Humans of Vulvodynia Society

I recently submitted my story to a new “Humans of Vulvodynia Society” survey from ME + MY V. This blog has some wonderful information, and I am especially interested in reading about other perspectives about vulvodynia. If you have vulvodynia, I encourage you to share your story (you can do so anonymously if you wish). The…

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My Story. Part 3. Trial and Error.

Lidocaine jelly. That’s the first thing I tried. I was told to lather it all over my vulva and vagina and wait 15-30 minutes before intercourse for everything to go numb. It seemed so simple. I was shocked that I hadn’t thought of something like that before. The way my vulvodynia was described to me…

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My Story. Part 2. Recognizing Something was Wrong and the Diagnosis

Hey there. It’s me again. Ready to write some more. I feel hesitant already, knowing that this will surface some deep emotions I try so hard to forget. But, I know I need to do this. Here goes nothing. Intercourse was painful for me. So, very painful. Like crying-in-the-fetal-position-for-hours-after kind of painful. We discovered this…

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Medical Journey: Elevator Pitch

I wanted to do a QUICK elevator pitch of my medical journey with vulvodynia, so that there is context when you read the other posts about what has helped/what hasn’t. I will keep updating this post throughout the course of this blog. Thanks! … I was diagnosed in 2015 (after I had my kids) when…

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My story. Part 1. The Early Years.

My medical history is a long, complicated, intertwined, and emotional one. It takes me to a place of incredible vulnerability. Reliving moments of hopelessness, let-downs, and anger. For this reason, I have been putting off writing this. But as each day passes, I feel frustrated with myself for not writing it down. For not getting…

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Symptoms and Effects of Vulvodynia

Stabbing pain. Burning. Itching. Glass shards. Every step is torture. Electric shock. Raw, tearing skin. Rose thorns inside me. Extreme tightness. These are very common ways women describe what having vulvodynia feels like. I have felt: 7/9   Excruciatingly painful intercourse. Can’t sit for long periods of time. Lost my job because of it. Can’t…

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The Purpose of Sandpaper and Glass

I’d been contemplating starting a blog for awhile now. At least a year and a half, in some form or another. In March 2016 I had a surgery for my vulvodynia. Up until then, I had kept my condition very private. I considered it in the “don’t ask, don’t tell” category of topics. Possibly in…

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Here Goes Nothing…

This is very vulnerable for me. Me, of all people. The person who has spent the past two years urging youth to be vulnerable. Yearning to foster a world of more openness, oneness, and empathy. Me, the person who will virtually tell any person our struggle if asked. Me, the person who has learned that…

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