Humans of Vulvodynia Society

I recently submitted my story to a new “Humans of Vulvodynia Society” survey from ME + MY V. This blog has some wonderful information, and I am especially interested in reading about other perspectives about vulvodynia. If you have vulvodynia, I encourage you to share your story (you can do so anonymously if you wish). The…

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My Story. Part 3. Trial and Error.

Lidocaine jelly. That’s the first thing I tried. I was told to lather it all over my vulva and vagina and wait 15-30 minutes before intercourse for everything to go numb. It seemed so simple. I was shocked that I hadn’t thought of something like that before. The way my vulvodynia was described to me…

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A Double Edged Sword.

A double edged sword. That’s what it is. Being a virgin prior to entering into a monogamous marriage as a woman with vulvodynia is a double edged sword. On one hand, I hold fast to my religious tenants about sexuality and how intimacy is between me and my husband and us only. It brings me…

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My Story. Part 2. Recognizing Something was Wrong and the Diagnosis

Hey there. It’s me again. Ready to write some more. I feel hesitant already, knowing that this will surface some deep emotions I try so hard to forget. But, I know I need to do this. Here goes nothing. Intercourse was painful for me. So, very painful. Like crying-in-the-fetal-position-for-hours-after kind of painful. We discovered this…

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Medical Journey: Elevator Pitch

I wanted to do a QUICK elevator pitch of my medical journey with vulvodynia, so that there is context when you read the other posts about what has helped/what hasn’t. I will keep updating this post throughout the course of this blog. Thanks! … I was diagnosed in 2015 (after I had my kids) when…

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Sorry, Not Sorry.

Is my insecurity showing? Yes, yes it is. Sorry if I share too many details. I am not trying to be insensitive, rather the opposite. I have learned through speaking with many women who have vulvodynia, that the more honest I can be about my experiences, the better I am able to help others.  I’ve…

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My story. Part 1. The Early Years.

My medical history is a long, complicated, intertwined, and emotional one. It takes me to a place of incredible vulnerability. Reliving moments of hopelessness, let-downs, and anger. For this reason, I have been putting off writing this. But as each day passes, I feel frustrated with myself for not writing it down. For not getting…

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The Power of Visualization

My heart aches. I yearn for him to return. He will be gone for months and months for military training and I miss him desperately. Sure, I can handle the day to day responsibilities of our family. I write him letters and it feels like I am talking with him. I know how he would…

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What is in my Amazon Cart?

As open as I am about having vulvodynia, there are times when I feel incredibly self-conscious and a little embarrassed about it. Today is one of those days. I had pelvic floor PT yesterday and my physical therapist recommended a few products to order on Amazon. I got online today and added a TheraWand, a lubricant, and a book to…

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First Comment…

“What kind of weirdo, freaky exhibitionist wants to post this kind of crap? Keep it between you and your gynecologist. They get paid to hear you whine about your lady parts. Even your husband doesn’t want to read this. Ew. Just stop it.” This. This is exactly why women are afraid to be open about…

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