My Story. Part 5. Healing through PT.

This is one of those posts that has taken me FOR.EVER. to want to write. I did a lot of soul searching and realized why. This is me currently. This isn’t my medical history… which is easily summarized… this is the active, messy journey that I’m on. I have anxiety about being criticized, being wrong,…

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My Story. Part 4. Aquagenic Pruritus and Systemic Nickel Allergy Syndrome

  I just exercised. Ran for 20 minutes and did a strength workout. I got sweaty and stinky (my kids will attest to that, they like to sniff around and say “ew, you stinky mama!”). It was 8pm, my kids were awake, I knew I wanted to get them to bed… but I also wanted…

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Humans of Vulvodynia Society

I recently submitted my story to a new “Humans of Vulvodynia Society” survey from ME + MY V. This blog has some wonderful information, and I am especially interested in reading about other perspectives about vulvodynia. If you have vulvodynia, I encourage you to share your story (you can do so anonymously if you wish). The…

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My Story. Part 3. Trial and Error.

Lidocaine jelly. That’s the first thing I tried. I was told to lather it all over my vulva and vagina and wait 15-30 minutes before intercourse for everything to go numb. It seemed so simple. I was shocked that I hadn’t thought of something like that before. The way my vulvodynia was described to me…

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A Double Edged Sword.

A double edged sword. That’s what it is. Being a virgin prior to entering into a monogamous marriage as a woman with vulvodynia is a double edged sword. On one hand, I hold fast to my religious tenants about sexuality and how intimacy is between me and my husband and us only. It brings me…

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My Story. Part 2. Recognizing Something was Wrong and the Diagnosis

Hey there. It’s me again. Ready to write some more. I feel hesitant already, knowing that this will surface some deep emotions I try so hard to forget. But, I know I need to do this. Here goes nothing. Intercourse was painful for me. So, very painful. Like crying-in-the-fetal-position-for-hours-after kind of painful. We discovered this…

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Medical Journey: Elevator Pitch

I wanted to do a QUICK elevator pitch of my medical journey with vulvodynia, so that there is context when you read the other posts about what has helped/what hasn’t. I will keep updating this post throughout the course of this blog. Thanks! … I was diagnosed in 2015 (after I had my kids) when…

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Sorry, Not Sorry.

Is my insecurity showing? Yes, yes it is. Sorry if I share too many details. I am not trying to be insensitive, rather the opposite. I have learned through speaking with many women who have vulvodynia, that the more honest I can be about my experiences, the better I am able to help others.  I’ve…

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My story. Part 1. The Early Years.

My medical history is a long, complicated, intertwined, and emotional one. It takes me to a place of incredible vulnerability. Reliving moments of hopelessness, let-downs, and anger. For this reason, I have been putting off writing this. But as each day passes, I feel frustrated with myself for not writing it down. For not getting…

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The Power of Visualization

My heart aches. I yearn for him to return. He will be gone for months and months for military training and I miss him desperately. Sure, I can handle the day to day responsibilities of our family. I write him letters and it feels like I am talking with him. I know how he would…

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