My Story. Part 7. Systemic Nickel Allergy.

Okay, friends. I feel a little uncomfortable writing this post and I’ve been avoiding it for months. Why, you ask? Because even though this is a part of my story, I am still trying to figure it out. Let me explain…   If you haven’t read my previous post about my skin issues, you can check it out…

Read More

Finding a Doctor

Image from @peacewithpain I’ve touched on this before… how I was dismissed by multiple doctors and told that I just needed to relax or “it will get better.” I learned to mask my pain with humor at GYN appointments. I learned to cry silently while they did the pap smear or pregnancy checks. I didn’t…

Read More

My Story. Part 6. Anxiety.

As you know, I have anxiety. I had dealt with it for a long time before knowing what it truly was. I always blamed other things for why I was so anxious all the time. I have a lot on my plate. I didn’t sleep well last night. Financial stress. Twins…. need I say more?…

Read More

Awesome Video: When You Can’t Have Sex

I literally cried when I watched this video for the first time. And, to be honest, I feel kind of vulnerable sharing this with you. Because Lara Parker (the main girl in the video, who legit has these conditions) does an excellent job showing what it is really like to have vaginal pain. The anxiety…

Read More

Space and Grace.

I’ve just returned to this blog from a 6-ish-month hiatus. I left without a warning, stopped responding to the blog e-mails, etc. And I am sorry for that. I hope each person who needed help was able to find it while I was away. I am going to be vulnerable in this post. Not with…

Read More

My Story. Part 5. Healing through PT.

This is one of those posts that has taken me FOR.EVER. to want to write. I did a lot of soul searching and realized why. This is me currently. This isn’t my medical history… which is easily summarized… this is the active, messy journey that I’m on. I have anxiety about being criticized, being wrong,…

Read More

My Story. Part 4. Aquagenic Pruritus and Systemic Nickel Allergy Syndrome

  I just exercised. Ran for 20 minutes and did a strength workout. I got sweaty and stinky (my kids will attest to that, they like to sniff around and say “ew, you stinky mama!”). It was 8pm, my kids were awake, I knew I wanted to get them to bed… but I also wanted…

Read More

Humans of Vulvodynia Society

I recently submitted my story to a new “Humans of Vulvodynia Society” survey from ME + MY V. This blog has some wonderful information, and I am especially interested in reading about other perspectives about vulvodynia. If you have vulvodynia, I encourage you to share your story (you can do so anonymously if you wish). The…

Read More

My Story. Part 3. Trial and Error.

Lidocaine jelly. That’s the first thing I tried. I was told to lather it all over my vulva and vagina and wait 15-30 minutes before intercourse for everything to go numb. It seemed so simple. I was shocked that I hadn’t thought of something like that before. The way my vulvodynia was described to me…

Read More